Thursday, February 26, 2009
Parker has been up and down. He is not really eating anything so that has been a struggle. He complains that he has a belly ache and that he is going to throw up. Which he hasn't. But we are just dumping pain meds on an empty stomach, that would make me sick too. He isn't sleeping real well at night either. One night this week we didn't wake him up to give him his meds and he spiked a 102.4 temp and was shaking uncontrollably. So we went back to meds every 4 hours. He says the back of his mouth hurts a lot, but that's to be expected. I try brushing his teeth very carefully, but a nasty side effect of the tonsillectomy is (really) bad breath. But we feel we are over the hump with today. The doctor said day 4-5 is the hardest and then it gets better. We just need to watch between days 7-10 for the tonsil scabs to fall off and watch for any bleeding. He is a tough little guy...
Tuesday, February 24, 2009
Sunday, February 22, 2009
Thursday, February 19, 2009
His tonsils are so enlarged that it puts pressure on his Eustachian tubes (middle ear) which causes fluid to back up in the ear which causes the hearing loss which causes the speech problem. His adenoids are enlarged and he therefore has sleep apnea. His adenoids are also most likely the problem he has with eating, or lack of. So he would benefit from having both the tonsils and adenoids out and tubes put in his ears. His audiology appointment showed that he still has flat tymps (fluid in the middle ear) and his hearing loss was around 45 decibels. So basically put your fingers in your ears and that is what he has been hearing this whole time! It's like he has been underwater since last June. The good news is, there is no permanent damage and his hearing nerve (?) is active.
Our ENT does surgery every Monday and the youngest patients go first. Parker is scheduled for this Monday @ 11:30 am for all three procedures. We need to be in Duluth at 10:30 am. He can't have anything to eat after midnight Sunday night but can have water and clear juices like apple right up until surgery. The whole procedure takes 30 minutes. Bear and I are taking Parker down early Monday morning. We will stay overnight Monday night since he most likely won't feel up to traveling. We should be home Tuesday by lunch. For the first week he can have soft foods. So I am going to stock up on ice cream, Yo-J, juice, Gatorade, pudding and yogurt. Any other ideas would be greatly appreciated...he will not eat jello. Also I have no idea if he will be able to talk right away or not??
So please say extra prayers for our little guy. We know it is very routine but it is still scary. He is going to wake up a whole new kid! He has never known anything different and thinks this is they way he should be hearing and feeling...which is all in itself so incredibly sad and happy at the same moment.
Wednesday, February 18, 2009
Tuesday, February 17, 2009
Emmitt had his 1 year well child check yesterday and Parker had his first dentist appointment. The whole day was very interesting and exhausting. I do it to myself. I have a day off, so why not schedule everything that needs to be done, on one day, all by myself (Bear is gone for the week working). I am a glutton for punishment, I swear.
While at Emmitt's appointment-which was horrible I might add-I had the Doc just check in Parker's ears to see if he still had fluid (flat tymps) and he said "oh, yeah...when is your appointment in Duluth?". He actually let me look in his ears to see what it looked like. It was terrible. Bulging, gross, ear drums...ick! So he said the good thing is we have the appointment, the bad thing is that he has had fluid on his ears for at least 10 days.
Emmitt had 4 shots, he has bruises on one thigh. They poked his finger for lead levels. His hands were super warm, which meant he bled for a long time. Parker was really ready to leave the clinic, but I couldn't get Emmitt's finger to stop bleeding. So the nurse wrapped it tight in a bandaid and as we were walking out to the reception desk Emmitt bit the bandaid off and the blood just kept coming. So I sit down and apply pressure, all the while holding him tightly so he would quit moving, which just made him squirm and scream more! Parker is now swinging the rope gate back and forth. I finally make eye contact with the receptionist and get another bandaid, simply by mouthing the word bandaid and the look on my face. Finally got that under control and out to the car and Parker has to pee! I actually made him hold it and told him he could have a surprise at home if he made it all the way there. He did.
Later on in the afternoon I took Parker to his first dentist appointment. He did perfect. I wasn't sure if he would sit in that chair the hole time but he did. We had read Mercer Mayer's Just Going to the Dentist book a few times yesterday and then again in the waiting room. It was the perfect book. We got in there and the nurse asked if he had a cold. Nope he just sounds like that. She wasn't sure he was even breathing through his nose or if he would handle the cleaning because he wouldn't be able to breath through his mouth. Well he did. Sort of. We realized he was basically holding his breath and then taking a really big one when he needed to. I covered his mouth and asked him to breath through his nose and he can...a little. It's definitely restricted though. All the more reasons to go to Duluth!
I'll keep you updated on what happens tomorrow...
Sunday, February 15, 2009
The songs playing are for 2 reasons. One, I love the Hawaiian version of Somewhere Over the Rainbow/Wonderful World and Two, I had no idea who Don Ho was and that he is obnoxiously famous for Tiny Bubbles. I have been sung that famous line from that song about 100 times in the last 2 weeks, just for not knowing who he was.
Mahalo (Thank You) to all you beachcombers! It was fun to escape the cold for a night, dress up in ridiculous outfits and watch our sweet baby turn one!
Thursday, February 12, 2009
Monday, February 9, 2009
Sunday, February 8, 2009
- random strangers and friends and family ask if he has a cold, all.the.time
- he talks through his nose
- most people cannot understand him when he talks, and that I have developed a severe case of mommy translation
- when he sleeps really hard he makes this weird spit bubble mass on his lips
- he catches his breath when he is sleeping like he is not getting enough air
- his tonsils are humongous and actually touch together
so she sets the whole thing up with 4 of the experts in the system and we are one of the first appointments in the day. We were planning on having Bear take Parker to the screening since he will act differently for mommy, but since this wasn't the whole screening, it was just Parker and I.
So first up is the hearing test. I wasn't even sure why we were testing the hearing, I just wanted some insight on his speech. But we get in their and the instructor tells him what to do and expect. He is supposed to wave his hand up in the air when he hears a beep, keep his eyes closed and be facing away from both of us. So the huge headphones go on and he sits in this tiny chair with his eyes closed. I was slightly surprised that he did what he was told on the first try. She takes him through a series of initial tests and beeps and he is not raising his hand. So she prompts him with a beep and then he does. We wanted to really make sure he understood what he was supposed to be doing and not just not following directions. So she continues with the test and then checks his tymps. They are flat. They are supposed to be curved. It's the part where the air (sound) goes in the ear and is supposed to hit the curve and bounce back out. His sound goes in and falls flat, like hitting a wall. Then she gives me a recap and I need layman's terms. Basically he failed the hearing portion of the screening. In order to hear the "beeps" she had to turn it up to 40 decibels. Normal conversation is 20 decibels. That hit me hard. I wasn't even planning on having his hearing tested! She says the problem is structural and most likely the pressure from his tonsils and adenoids that are causing the hearing loss. I tried hard not to break down. Not in front of Parker and we still had more testing to go through.
So off to the speech and language section. The "tester" is an acquaintance and fellow daycare mom. So she knows Parker and has heard him talk in his normal atmosphere. She is a speech therapist so I am hoping to get some insight. This test goes pretty good. I think because I know his speech isn't all there. We realize he is very descriptive when giving her answers. Like; a hat on the table and he is asked "what is that"? He doesn't just answer hat, but "a cowboy hat". Same for the "little white shoe", etc...So we wrap up the test and she gives me a recap. He failed the speech section but passed in language. She definitely says I should push for the tonsils and adenoids to come out. They are hindering many of the sounds he should be making. This age is so critical since they are little sponges and absorbing everything right now. It is a huge time in his life for speech and language. He did really well on his language-so he is smart, it's just that most don't know what he is saying! His articulation was on the lowest end of the good range. So we wrap up and head to the car.
I immediately call Bear and explain as best I can what happened and the results. We both agree that what happened last summer with the ENT we saw is just not acceptable anymore. I could barely choke out everything to him while on the phone. I get him to daycare and the one simple question of "how did it go?" caused me to break. I lost it. I felt such guilt for not knowing that my kid couldn't exactly hear. Pain for him, that he has been living like this for almost a year. Guilt for yelling at him a lot for not listening, when maybe it isn't all his fault. Worry that we may actually need to have him in for surgery. Sadness that my baby will be in pain. Anger for not trusting my instincts the first time I thought he needed to get looked at.
So I get to work for the day and try to stay strong. I call my family practitioner and leave a message for him or his nurse to call me back. When they do I tell them the screening results and that I want to see an ENT in Duluth, not the one we already saw, and that I don't know if they need to refer me or if I can make the appointment on my own. That was it...my doctor said, I understand let's do it. I requested the 13th or 16th, since I am already off from work those days and would be able to make the trip down. So now we wait until they Duluth clinic processes the request for the appointment...at least we feel like we are taking charge and are confident that we will get this taken care of sooner than later...say an extra prayer for us.
Thursday, February 5, 2009
Tuesday, February 3, 2009
Hanging with Uncle Scott